Before I became what alot of us, (well, those of us that wear the title) call, a "heart mama," I never experienced some of the every day waves of pain that I do now. Things that come and go...
The Boy With Half a Heart - Photographic Essay
Thursday, August 24, 2017
/
chd blog,
chd mom,
chronically ill child,
heart mom,
heartmom,
hlhs,
hlhs blog,
hlhs heart mom,
hlhs mom,
hlhs mom blog
/
Leave a Comment
Hello beautiful people! I haven't posted in a while, and I apologize - life has certainly caught up with my family. Between finding out that Charlie has some brain damage that is contributing the...
CHD, GUIDE** for new parents
Wednesday, February 22, 2017
/
chd,
chd blog,
chd mom,
chd parents,
child disability,
chronically ill child,
disability,
heart mom,
heart mom resources,
hlhs,
hlhs blog,
hlhs mom,
hospital mom
/
1 comment
As promised, I'm coming to you as one heart mom, to another, with every single resource I can find to help you along on your journey!
Let's face the facts, this. is. hard. I promise you though,...
When You Find Out Your Baby Has Congenital Heart Disease
Generally, we move through life knowing that bad things happen to good people. Children get cancer, total accidents take beautiful lives, and tragedy touches the most innocent places. We understand...
My Son Was Born with a Heart Defect, Here's What You Should Know
Tuesday, August 9, 2016
/
chd,
heart mom,
hlhs,
special needs mom,
special needs parenting
/
2 comments
Charlie, January 2015, after his first open heart surgery. He had a stroke shortly after.
Everybody knows it's a possibility that any child can be born with something very wrong with them....
An Open Letter To My Hardships
Wednesday, May 18, 2016
/
Leave a Comment
This post first appeared on TheOdyssey - follow Abigail Conway @ TheOdysseyOnline
I finally emerged from my bed, after hours of tossing and turning, and fighting to fall asleep....
Oh Sweet Heart Mama, "Normal" Does Come
Thursday, September 17, 2015
/
chd,
chd story,
child disability,
chronically ill child,
disability,
finding normal,
sick children
/
Leave a Comment
We are twenty-one months out from the very first time I saw my son, and also the very first time somebody told me he was severely ill - hypoplastic left heart syndrome - the phrase still echos in my mind, and as it rattles around it still manages to shake a few tears out of my eyes, because even nine months out, that memory is so fresh and I can feel that uncertainty and fear in my bones like it was only yesterday.
I have to tell you though, from one parent living in a medically dramatic world to another, normal does infact come.
It doesn't come wrapped in a big beautiful ribbon. It doesn't come in a form that you could ever possibly remember from life before, and it doesn't come as a signal ending this new world we are in, no. It comes in the form of giving medicine second nature. It comes in the form of becoming good friends with parents just like you. It comes with building your normal life, around your crazy medical portion, and it all working like a big, synchronized, beautiful mess.
It doesn't come wrapped in a big beautiful ribbon. It doesn't come in a form that you could ever possibly remember from life before, and it doesn't come as a signal ending this new world we are in, no. It comes in the form of giving medicine second nature. It comes in the form of becoming good friends with parents just like you. It comes with building your normal life, around your crazy medical portion, and it all working like a big, synchronized, beautiful mess.
10 things I Learned When My Son Was Born With A Heart Defect
Monday, August 3, 2015
/
1 comment
I learned one-hundred million things when my son came into this world with a congenital heart disease, but some things have completely stuck with me and I'm sure they will until my life is...
5 Things Every CHD Mom Knows
I am the mother of a boy who was born looking like perfection, but who quickly showed that his heart wasn't built to keep him alive outside the womb. Fortunately, I am also the mother of a son...
How To Watermark a Medically Sensitive Picture and Why You Should
Tuesday, June 2, 2015
/
chd photos,
foureasthearts,
how to watermark,
medically sensitive photos,
protect your childs photos,
watermark,
watermarking,
why you should watermark
The purpose of this post is to show how to watermark your sensitive pictures (ie; with chest scars, breathing tubes, chest tubes, and other medically sensitive images) to protect them from being stolen,...
Dear PICU nurse,
Saturday, May 30, 2015
/
chd,
dear picu nurse,
heart mom,
hlhs heart mom,
hlhs mom,
hospital mom,
nurse,
peds nurse,
picu nurse,
sick children
2 am, she drinks another energy drink, and rubs her tired eyes. Her feet move fast across the intensive care unit floor. She cares not only for sick children, but she cares for their...
Across the Table | Hospital Mom Diary
Friday, May 22, 2015
/
chd,
comfort care,
grief,
heart mom,
heaven,
hlhs heart mom,
hlhs mom,
palliative care
Just two nights ago, I met you; A clearly, emotional distraught, young lady, who just had her first child. Most of the time, in the world I used to inhabit, child birth was a cause for celebration,...
How Friendships Changed | A Hospital Mom's Diary
It's just like when you have a baby, and some friends disappear. It doesn't happen all at once, they buy baby clothes, they throw you a shower, but once the baby comes and the excitement wears...
