Showing posts with label hlhs blog. Show all posts
Showing posts with label hlhs blog. Show all posts

The Boy With Half a Heart - Photographic Essay

Thursday, August 24, 2017 / Leave a Comment


Hello beautiful people! I haven't posted in a while, and I apologize - life has certainly caught up with my family. Between finding out that Charlie has some brain damage that is contributing the epileptic behavior, school starting, my weight loss journey, my business - we have been strapped for time. However, I recently created a photographic essay for school. I am on my way towards a graphic design degree, and decided to take some photography classes as well. I thought you all would love the outcome of this essay!


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CHD, GUIDE** for new parents

Wednesday, February 22, 2017 / 1 comment




As promised, I'm coming to you as one heart mom, to another, with every single resource I can find to help you along on your journey!

Let's face the facts, this. is. hard. I promise you though, you are not alone! Heart moms stick together, and I promise you will find this list to be useful along the way.


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Here's To the Siblings of The Chronically Ill

Thursday, April 16, 2015 / 4 comments



Being the parent of a seriously ill child is no doubt difficult. You have an innumerable amount of things going on that have to happen to keep your child alive. Just knowing that is stressful, but actually dealing with it is a whole other story. One of the especially heartbreaking parts of it all for me, is my healthy little girl. Unfortunately, your sick child requires more attention, they may need to be hospitalized (for long or short periods). They have to come first because for them, it's life or death.

Before my son Charlie came along, it was all Dakota all the time. She had me completely wrapped around her little finger. Now my world is consumed by these two huge pieces of me, one is wild and free, the other is tapered down in a hospital bed. There is only one of me, and now two worlds for me to juggle, and one of my little worlds is fragile, while the other is growing up and requires room to run, and play. I cant give that to her in this hospital room. I have to miss her in order for her to have some normalcy in her life, and she has to miss me.


So, she stays with her grandparents. She is taken care of and happy. I call her every single night, and I can tell she is heartbroken. She begs me to pick her up, cries to me, and honestly the part that hurts the worst, is that shes hurt so many times over it that she stopped fighting it. I know that should be a relief, but its depressing at the same time.

She suffers too. The siblings go through this too, they miss there siblings, and life becomes so much out of their control that behavioral, and emotional problems can arise.

Dakota is an amazing big sister. She knows bubbys heart is "broken". She pretends to be his nurse. She always makes sure if he's okay, and tells us to call "Dr.Kims" (Dr.Kim). She kisses him and putts her hand on his face. She's never hateful towards him, she never blames him, she loves him and makes me so proud. So here's to the siblings of the chronically ill. They too, make sacrifices.


Leave a comment below if you related to this post, I'd love to here your story and feedback. <3

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